kelly obigael
XLH
At 20 months old I was diagnosed with hypophosphatemic rickets, a rare, chronic, inherited, progressive, and lifelong disease that primarily affects bones, muscles, joints, and teeth. However, it's not just my legs that have been affected; XLH has impacted every area of my life for as long as I can remember, and although I've now come to terms with my condition and my health is technically good, the journey has been anything but easy.
That is why, since the XLH y Otros Raquitismos México was created in 2019, I began collaborating with them in raising awareness and visibility to XLH, as well as in the fight for our rights as patients: early diagnosis and access to appropriate treatment; all with the aim of improving the quality of life of all people living with XLH in Mexico.
And while it all started with the need to do something for new generations, so that no child has to go through the ordeals I faced at the time, becoming an advocate was never in my plans and I don't know how it happened, but activism became a central part of my values as a person and now I can't imagine my life without it.
I invite you to learn more about XLH on the XLH Mexico official website and on their socials.
